Caregiver Support; It’s Just a Click Away

Whether you are providing care to a parent, child or spouse there is one thing for sure:  No matter how great a caregiver you are to your family member, you cannot go through it alone.  Often I hear that caregivers feel that no one else really understands what they are going through, or that they feel their friends don’t really want to hear them talk about their caregiving trials and tribulations.  Lucky for you, there is a whole community of caregivers just like you and finding support from others who fully understand what you are going through is just a click away.  

The following is a list of online caregiver forums and support groups along with their mission statement.   Maybe you can find one that you feel comfortable with, any maybe you can offer your experience and support as well.  

Caregiver Action Network 

Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

Aging Care

AgingCare.com provides families with the necessary information and support to care for their parents, spouses or other elderly loved ones.

Caregiving.com 

When you care for a family member or friend, we care for you. We’re a community of supportive individuals caring for a family member or friend. We care for parents, spouses, siblings, grandparents and anyone we consider family. We care for you before, during and after caregiving. Create your free account to join our daily, weekly and monthly chats, to start your blog and to connect with others who understand.

AlzConnected 

ALZConnected® (alzconnected.org), powered by the Alzheimer’s Association®, is a free online community for everyone affected by Alzheimer’s or another dementia, including:

  • People with the disease.
  • Caregivers.
  • Family members.
  • Friends.
  • Individuals who have lost someone to Alzheimer’s.

The Caregiver Space

Not everyone has friends who understand or will even listen; that’s why we’re here. We provide a safe and open space—at no cost to you— where you can be real about what it’s like to care for someone dealing with a serious disability or illness.

You can use our community forums to ask questions, share experiences, get real answers, or just get things off your chest.  Please do not use this space as a substitute for professional advice from your lawyer or doctor.

No matter what stage you are in your caregiver journey—whether you currently care for someone, are about to, or did it in the past—you’re welcome here. This website is always accessible, so you can look forward to finding comfort and relief at any hour of the day or night.

AARP Caregiving Community 

In this forum, we discuss all topics related to caregiving in hopes of improving the quality of life for caregivers.

Dementia Forum 

A place for online discussion for those affected by the symptoms of dementia. Here you can ask for help, advice and suggestions. Join in and share your experiences in order to find support from others that are also affected by dementia.

Cancer Compass 

Caregivers and loved ones also need assistance when it comes to coping with cancer, and our online forum resources are a helpful place to turn to for additional information and support. Please share your experiences with us today.

Cancer Survivors Network 

Welcome to our community of cancer survivors, families and friends! Our lives have been affected by cancer in ways only those of us who have “been there” can truly understand. We invite you to join today to fully experience all that the Cancer Survivors Network (CSN) has to offer.

The purpose of the Cancer Survivors Network is peer support. Site content is contributed by its members. Their contributions reflect their own personal views, feelings, and experiences.

ALS Forums 

“We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community.”

Stroke Net 

Our mission is to provide on-line support to survivors of stroke and stroke caregivers. We also want to educate you about stroke and to provide as many resources and other types of information as we can.

We want to bring support to the stroke survivors and other members of the stroke family that want to use the Internet as a medium for bringing a support group right into your home. We are aware that not everybody has the luxury of having a Stroke or Caregiver Support Group close to them or at a time that is convenient nor does everybody have the transportation to travel when you want.

Our hope is that we can provide on-line assistance to the stroke survivor and their loved ones and help them transition from a life of being able-bodied to one of living with the disabilities that stroke can cause.

Depression Forums

Our mission is to create an atmosphere that is both supportive and informative in a caring, safe environment for our members to talk to their peers about depression, anxiety, mood disorders, medications, therapy and recovery.

Our vision is to advance the public awareness of mental health issues so as to eliminate the stigma that surrounds depression and mood disorders through education and advocacy, as well as striving to obtain quality medical care for mental health patients, as it is no different from any other medical illness

COPD Support 

I couldn’t find a mission statement or “about” page, but they have tons of discussions related to COPD and support

Breast Cancer Community 

Breastcancer.org is a nonprofit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer and breast health as well as an active and supportive online community.

 

Let me know if any of these resources were helpful for you!

Happy caring,

Sofia

 

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